On the mri front. I called and spoke to the nurse in the neurology unit at BC Childrens and she said they go over the film first to be sure there are no glaring abnormailities (thank god on that front) but then they have the pediatric neuro radiologist go over it very carfully to make sure there is nothing. They look for lesions or growths of any kind that could cause siezures. Soooo we wait....because there is apparently only one of these such doctors in our province. My fingers and my heart is crossed that it's all fine. The behavior coming out of this child is sending us around the bend though. She tells us the only thing she can think of is that she must be having more siezures at night because she can't even stand anybody speaking around her at times. Irritability scale is off the charts. Trouble with friends at school, calling her sister unmentionable names and hitting. We are SO.TIRED.OF.THIS!! What is a parent to do though?? Is it a brain tumor or is it epilepsy or is it plain old nasty rotten brattyness??? I would love to know from ANYONE!!! We are so tired and emotional and did I mention tired.
Example...
Mom or Dad.... pre teen can you please do your home work
Preteen.... I DONT HAVE ANY
Mom or Dad....pre teen can you bring me your planner
Preteen... GRRRRRRRRR RAHHHHHHH YOU NEVER BELIEVE ME
Mom or Dad.... pre teen we need to sign your planner every day.
Preteen... I LOST IT OK Screaming and crying goes on for hours.
...........................................................................................
Mom or Dad.....Please empty the dishwasher
Preteen... GRRRRRRRRRRRRR RAHHHHHHHHHHH Lays down on kitchen floor and continues screaming feet and follows mom or dad around house screaming and howling.
______________________________________________________________
I never imagined I would have a child who could scream until her nose bled. I pray they adjust her meds and help us help her. This is not life. This is not living.
Tired...
No comments:
Post a Comment