not in my wildest dreams that my child would develop epilepsy. Or maybe she's had it all of her life. I am going to ask the neurologist the next time I see her. On to my bloggable decompression. You see I come here to type out the stress and things magically feel a wee bit better. Anyhow. The pre teen was invited to go camping with a friend and the friends grandparents for 10 days. The Dad and I looked at each other and the first thing he said to me was "that's a long time for her to be away from us"... You see...lack of sleep can cause her to have a seizure, an illness can cause her to have a seizure. She only has seizures in her sleep and they are grand Mal type and if she has anything in her bladder well it expels. You see where I'm going with this. SO we let her go because she wouldn't have it any other way. We made sure her phone was with her and had unlimited texting so that she could contact us whenever she wanted to and we could remind her to take her epilepsy med. Then on Day 5 (I think) she texts me at 6am saying mom, "this is the worst camping trip ever. I just woke up from a seizure in pee, I feel like I'm going to vomit and I'm the only one awake and there is nobody here to help me." OK Rip my heart out and stomp on it. She's probably not had enough sleep and now she's completely embarrassed and I cannot protect her from this.
So I think fast and I text her back "Listen to me kiddo, put the blanket and the wet clothing in the garbage bag that I put into your suitcase for dirty laundry. OK"
Pre Teen, "OMG Mom I cannot do that because friend freaked out last night because it was cold so she went and got a different blanket so I soiled their blanket. AND MOM friends teenage sister is sleeping here in the tent with us."
ME, "Pre Teen, listen to me, what is friends mom's cell phone number so I can text her??"
Other mom works in the same profession as me and I told her that if Pre teen was to have a seizure in the form of a grand mal pre teen would be aware by waking up wet. So after about a half an hour of back and forth about how this is the worst experience of her life she managed to get the other girls moms cel phone number so I could text her.
I text the mom and she tells me she will go into the tent and get the blanket out and check on the preteen. All was well after that.
She swam that morning and cleaned up and told me it had all blown over. NOT FOR ME!! I was still horrified about the whole ordeal. I don't think I'll ever get used to this.
I am however glad she gets over these things rather quickly.
