Still no news...

On the mri front.  I called and spoke to the nurse in the neurology unit at BC Childrens and she said they go over the film first to be sure there are no glaring abnormailities (thank god on that front) but then they have the pediatric neuro radiologist go over it very carfully to make sure there is nothing.  They look for lesions or growths of any kind that could cause siezures.  Soooo we wait....because there is apparently only one of these such doctors in our province.  My fingers and my heart is crossed that it's all fine.  The behavior coming out of this child is sending us around the bend though.  She tells us the only thing she can think of is that she must be having more siezures at night because she can't even stand anybody speaking around her at times.  Irritability scale is off the charts.  Trouble with friends at school, calling her sister unmentionable names and hitting.  We are SO.TIRED.OF.THIS!!  What is a parent to do though??  Is it a brain tumor or is it epilepsy or is it plain old nasty rotten brattyness???  I would love to know from ANYONE!!!  We are so tired and emotional and did I mention tired.

Example...

Mom or Dad.... pre teen can you please do your home work

Preteen.... I DONT HAVE ANY

Mom or Dad....pre teen can you bring me your planner

Preteen... GRRRRRRRRR  RAHHHHHHH YOU NEVER BELIEVE ME

Mom or Dad.... pre teen we need to sign your planner every day.

Preteen... I LOST IT OK  Screaming and crying goes on for hours.

...........................................................................................

Mom or Dad.....Please empty the dishwasher

Preteen... GRRRRRRRRRRRRR RAHHHHHHHHHHH Lays down on kitchen floor and continues screaming feet and follows mom or dad around house screaming and howling.



______________________________________________________________

I never imagined I would have a child who could scream until her nose bled.  I pray they adjust her meds and help us help her.  This is not life.  This is not living.

Tired...

Ode to the little one...

Houston! I think we have a problem here!

As I sit at my computer on a Saturday afternoon thankful that finally I can sit and there is peace and quiet for at least one single moment.  I suddenly hear screams of horror and fear from the smallest of our crazy family....crazily looking for either a mirror or a parent.  Whomever she could find first to confirm her fear of BLOOD.  At first I thought maybe the sweet darling evil cat may have scratched her eyes out finally.  After all he's not the kindest kitty in the coop.  Although she is not the most gental child in the wild either.  lol  OR maybe she could have a bleeding nose from sticking her finger up there the dry air lately.  Anyhow....there were screams of terror coming from my child like there could be a trip to the hospital in her near future...BUT...she finds me and you want to know what this panicked child had going on.  This screaming in terror, hyperventillating kid!?  A.LOOSE.TOOTH.  with a tiny bit of blood.  Ummm kiddo....god love you but lord help you when you get your period.

We are in a leeeetle bit of trouble.  Never have I met anything like her.

No news is good news....

I'm hoping....

because well the alternative is unthinkable for this mom.

Off to bed....

Still waiting for MRI results...

Waiting is really hard. It is the hardest part of all of it. I don't know anything and I don't know when I will. My boss (who is a doctor) and I are going to call today to see if we can learn anything. UGH. My child. Her brain. Did I mention that this is really hard.

I can't imagine what she must wonder. My beautiful girl.

Time to get ready for work.

I took the phone away from the pre teen....

Last week for behaving horribly to her little sister and everyone else around her. I DONT KNOW WHERE I PUT IT!!! Oh my gosh I am one mom in deep. S**T! It must be here somewhere. I am terrible, I admit it. Mom of the year goes to me. 1st because what 11 year old needs a cel phone anyhow and 2nd how can I take it away and lose it. oooo I hid it good this time.

In other "log it in the blog" news my 15 year old is in LoooOOOOoooVeee. Ooooo it's starting now. Lord help us if they break up. This girl is really nice and smart and respectful BUT they are young and in LoooOOOooooVeeee and the highs can come with some deep lows. I hope this doesn't end badly. Or worse ..... SEXX ugh (careless sex). Nooooooooooo La La La La La La La La. I don't know what's worse. Driving the first year or sex while still school aged. SHOOT ME NOW!!! I don't know if I can handle this times THREEEEE! I should have read a readiness handbook about all this stuff before a begged for this all times 3. Why wasn't I forced to read that handbook. It probably wouldn't have changed me but I wouldn't be in shock about it.

The husband is building a deck (well a half deck) around the pool today so I can sit up there and make sure the mess maker I mean darling 6 year old doesn't drown. OR drink daquaries in the sun with toes in the water. I think there are pool chairs for that. I will be buying my OWN for such purpose. Once we figure out how to keep this large body of water clean. For crying out loud the scum is growing already and we have yet to figure out the chemicals. My job for today is to master the pool chemicals and eliminate the green goblins growing on the bottom of our pool already.

Off to find a site for pool chemicals.

The MRI is Over....

And we don't know when we get the results. I will call the pediatric neurologist on
Monday though. Children's Hospital is amazing. If pre teen has a grand mal in the night and I call the will put me right through. I can speak to whomever I need and they are so warm and kind. They know it's not fun for me or the pre teen. They adjust meds over the phone and send prescriptions. I love them. Done't get me wrong I pray all the time that we did not need them in our lives but if we have to have someone BC Children's is the place to be for us. NOW... we just pray that we do not need them any more than we already do.

So there was a little misconception when they got Pre Teen to agree to the MRI with no general anesthetic....yeah. Say what you can to get the kids to agree to it if it's necessary and once they get there they cannot back down. Well it worked anyhow. Back before Christmas we saw the neurologist at the hospital and they had concerns that Pre Teen needed the MRI ASAP but if we waited for sedation it would be WAY longer than if she did it awake. Soooooo being that our Pre Teen has sensativity issues from the seizures that she has one of them among many is chlosterphobia. Fun times. It's ok kiddo we'll buy you your favorite movie. So we arrive there and uh oh. The radiology nurse says I hate it when they make those promises to the kids. The part of the brain that they are trying to get pictures of they do not want Pre Teen's eyes darting back and forth and the DVD machine also causes some issues too. So anyone who reads this and is told that your child get's to watch a movie in the MRI machine at BC Children's it's a common misconception for neurology patients. I don't known about other parts of the body. It may not interfer.

Pre Teen said it wasnt as loud as she thought it was going to be. The only thing she said that bugged her was the itch on her arm and one on her nose. Otherwise it was fine. I'm glad we made it through with no general sedation.

Now with every fiber of my being I pray that we are just experiencing the run of the mill epilepsy and nothing more.

Time to figure out what the heck I'm going to wear to work.


Good times.

Teenage boy just says "Mom I don't think I have any clean clothes." who's fault is that son. Possible mine (teenage boy). Well son I guess you should wash some hey! hmmmmm.... (Teenage boy cleaned his room last night and probably put his clean and dirty clothes all in the laundry. Sorry about your luck dude.)

Good Times!

MRI's, lost channel changers, & keys, oh my!

It's been a busy couple of days. Either today or tomorrow is Courtney's MRI. To be confirmed this morning. Through the stress and anxiety I screwed up writing the appointment but she told me Thursday, May 5th. Today is Wednesday and it's the 5th. Ahhhh now my husband is in a fluff.

Some how the kids have lost both the channel changers for both of the televisions. I don't pay attention to the tv's so it's quite nice for the house to be so quiet. I am laughing inside. They are missing their digital television. I wonder if they think I hid them on them. I didn't though. LOL


Laptop is running out of power....